We are out...but still waiting

Caden was supposed to go back inpatient Monday or Tuesday. That's not going to happen. He had an outpatient clinic visit on Thursday. He had another LP (lumbar puncture) to get more marrow and a dose of chemo into the cerebral spinal fluid. This will be done in anticipation of each approaching round.

When he was in clinic another family came in and one of their children had chickenpox. He was exposed. He had the vaccination for chickenpox some time ago, but between the leukemia and the chemo all of the antibodies are gone. He is very susceptible. So now instead of starting intensification (round three, and yes it is as bad as it sounds) he has to go in tomorrow for a special infusion of blood from donors that have the antibody he needs. So we will sit in clinic for about 6+ hours while he gets that. It is not to prevent, it's too late for that, it is to give him a fighting chance with the onset of chickenpox.

Then we wait some more. Wait to see...... if from 72 hours from his special infusion he is chickenpox free, then he will go inpatient and start intensification. Round one and round two were referred to as induction, introducing the poison into his body. This round, they add more drugs and the dosages are increased. Watching my baby through the first two rounds fight for his life was sooooo hard, now it's going to get even worse. I can't even imagine that, but it will. Pray for my baby. In case you don't know his name it's Caden John, and if he makes it, he will be 4 on May 11.

God be with us,

Schelly and Boys