Wednesday, May 28, 2008
We're out!!!!
After 41 days inpatient we are out for five days. Caden had another CAT scan on the 26th and everything looked much better. He does have some nodules in his lungs but they do not think they are tumorous. The doctors think it is a fungal infection, but that in itself is deadly for children in Caden's position. We get a break for a few days but he has to stay on a couple different meds including one for his lungs. I also found out that he will have to stay on that med for his lungs for six months after we get back to Alaska and have periodic CAT scans. Thank goodness for health insurance!!!!! His counts were barely high enough to get out, but they took him off of his IV nutrition yesterday and since then he has slowly began eating on his own. Excellent news all around. As soon as his counts are up enough we are all going to the Zoo. A promise we made him as a late birthday present. So that's all the good news, but unfortunately there is also some bad news. When he goes back inpatient on Tuesday, he will probably be scheduled for a lung biopsy. They want to be sure it is not tumorous and verify which fungus it is so they can treat it with the appropriate anti-fungal medication. We were doing so good and I thought we might even get home early, but this last phase has set us back some. It's looking like we will be home by the end of July now. Oh well, when we are meant to be home we will get there. Please continue your warm thoughts and prayers!!!! After the Zoo trip I will put out another update and some new pics. Stay tuned!!!
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